PSC-IBD Patients and Families… Protect your access to ANI Pharmaceuticals Oral Vancomycin

Patients, parents & advocates protecting access to oral vancomycin (OVT) for PSC-IBD. Facing barriers with ANI vancomycin? Your story matters.

Share your journey. Add your voice. Help us protect access to ANI Pharmaceuticals Vancomycin.

PSC-IBD Access Project is a patient and family-led advocacy initiative built on one simple truth: oral vancomycin therapy (OVT) using ANI Pharmaceuticals’ vancomycin has changed and in many cases saved the lives of PSC and IBD patients, including children.

We are parents, patients, caregivers, and advocates who have witnessed firsthand the life altering impact of this treatment. We are uniting as a community to ensure ANI continues manufacturing this critical medication, that pharmacies understand its irreplaceable value, and that physicians have access to accurate, up to date research including the retraction of studies that have been used to incorrectly dismiss OVT as a treatment option.

This is a strength in numbers movement. Every story shared here becomes data. Every data point becomes leverage. Together we will make the case to ANI, to pharmacies, to the medical community, and to policymakers that access to the right vancomycin is not optional for the patients who depend on it.

Share your journey. Add your voice. Help us protect access.

PSC-IBD Patient Journey & Access Survey
Are you currently having difficulty obtaining ANI Pharmaceuticals vancomycin?
What barriers are you facing? (Select all that apply)
Have you been switched to a different manufacturer's vancomycin without your consent?
Who are you completing this form as?
e.g. ANI Pharmaceuticals, or other generic brand name
Did oral vancomycin improve the patient's condition?
This is important data for our advocacy efforts.
Overall health improvement since starting vancomycin (1 = No improvement, 5 = Life-changing improvement)
Include patient, siblings, parents, and caregivers
Has the patient missed significant life events due to illness? (sports, milestones, social events, family activities)
Optional — share as much or as little as you are comfortable with
Has a caregiver or parent reduced work hours or left employment due to caregiving demands?
Is vancomycin covered by your insurance?
Did you have to advocate for oral vancomycin against your doctor's recommendation?
Were you threatened with being dropped by a doctor or medical provider because of your pursuit of oral vancomycin therapy?
Have you been dismissed, warned, or discouraged from pursuing OVT by a medical provider?
Optional — your experience helps us educate doctors and policymakers
How much do you feel others (doctors, insurers, pharmacies) are in control of your or your child's health journey?
Do you ever feel helpless when it comes to managing your or your child's PSC-IBD treatment?
This is the most important part of the survey. Share as much as you are comfortable with — your story is your voice.
Community Support
Contact Preference
DISCLAIMER: PSC-IBD Access Project is a patient advocacy organization and is not a medical provider. Nothing on this site constitutes medical advice, diagnosis, or treatment recommendations. Information submitted through this form is collected solely for the purpose of patient advocacy, research aggregation, and lobbying efforts. By submitting this form you consent to your information being used anonymously in advocacy materials unless you explicitly opt in to being contacted. We are not liable for any medical decisions made as a result of information found on this site or shared by members of this community. Always consult a qualified medical professional regarding your treatment.
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